Patient Stories

Getting real with
ORGOVYX patients

Get inspired by real patients who were prescribed ORGOVYX for their ADT* treatment.

The patients featured here are taking or have taken ORGOVYX. The individuals featured in the videos were paid by Sumitomo Pharma America and Pfizer to share their stories. These patient stories were accurate at the time of publication.

*Androgen Deprivation Therapy (ADT)

JOËL
Advanced prostate cancer doesn't know how resilient I am. Doesn't know how resourceful I am. Doesn't know how determined I am. I enjoy being outdoors. Hiking, kayaking, every chance that I get an opportunity to do that. Now I'm retired and enjoying the freedom to create my own schedule every day. For me, art is freedom. I don't get caught up in trying to draw pretty things. It's more about color and expression. It was so devastating to get this diagnosis out of the blue. It was really pulling the rug out from under me. Any time I've been faced with a challenge in life, I get very focused. So what I had to do was seek out support groups. I had one which was at our local LGBT center that was more of a social and emotional support group. There was another group here in San Diego that held monthly forums that was very helpful for group discussions. So ORGOVYX came onto my radar early.

AVO
What is ORGOVYX? ORGOVYX is a prescription medicine used in adults for the treatment of advanced prostate cancer. It is not known if ORGOVYX is safe or effective in females or children.

Do not take ORGOVYX if you have had a severe allergic reaction to relugolix or any of the ingredients in ORGOVYX.

What should I tell my healthcare provider before taking ORGOVYX?

Tell your healthcare provider about all of your medical conditions, including if you:
  • Have any heart problems, including a condition called long QT syndrome.
  • Are pregnant or plan to become pregnant. ORGOVYX can harm your unborn baby and cause loss of pregnancy (miscarriage).
  • Have a partner who is pregnant or may become pregnant.
    • Males who have female partners who are able to become pregnant should use effective birth control (contraception) during treatment with ORGOVYX and for 2 weeks after the last dose of ORGOVYX.
  • Are breastfeeding or plan to breastfeed. It is not known if ORGOVYX passes into your breast milk.

Tell your healthcare provider about all the medicines or treatments you receive, including: prescription and over-the-counter medicines, vitamins, and herbal supplements. Taking ORGOVYX with certain other medicines can affect how ORGOVYX works or may cause side effects.

You should not start or stop any medicine before you talk with your healthcare provider who prescribed ORGOVYX.

JOËL
One needs to review things with their medical doctor and make their choices that are appropriate. Advanced prostate cancer is overwhelming. And you cannot be passive in dealing with this. You need that motivation to get up every day and face what's coming at you. Every day is a gift.

AVO
What are the possible side effects of ORGOVYX?

Serious side effects of ORGOVYX include:
  • Changes in the electrical activity of your heart (QT prolongation). Your healthcare provider may check your body salts (electrolytes) and the electrical activity of your heart during treatment with ORGOVYX. Tell your healthcare provider right away if you get any signs or symptoms of QT prolongation, including:
    • dizziness
    • fainting
    • feeling that your heart is pounding or racing (palpitations)
    • chest pain
  • Allergic reactions. Stop taking ORGOVYX and tell your healthcare provider or get emergency medical help right away if you get any signs or symptoms of an allergic reaction, including:
    • swelling of your face, lips, tongue, throat, or trouble swallowing
    • trouble breathing
    • hives (raised bumps), rash, or redness all over your body
Most common side effects of ORGOVYX include:
  • hot flushes
  • increased blood sugar levels
  • increased blood fat (triglyceride) levels
  • muscle and joint pain
  • decreased blood hemoglobin levels
  • increased liver enzymes
  • tiredness
  • constipation
  • diarrhea
ORGOVYX may cause other side effects including weight gain, decreased sex drive, and erectile function problems.

ORGOVYX may cause fertility problems in males, which may affect your ability to father children. Talk to your healthcare provider if this is a concern for you.

These are not all the possible side effects of ORGOVYX. Call your doctor for medical advice about side effects or if you have a side effect that bothers you or does not go away.

You may report side effects of prescription drugs to the FDA. Visit www.fda.gov/medwatch or call 1-800-FDA-1088. Please see full Prescribing Information, including Patient Product Information, via the link provided.

FRANK
Prostate cancer would look at me and say that I'm vulnerable. But I'm not that type of person. It picked a fight with the wrong guy. My dad being a steelworker—worked every day of his life. Always in the back of my mind, what would my dad do? During the Vietnam War, some very difficult times—you couldn't quit, your life depended on it. But you reach a point in your life, facing the challenges—you need help.

GAIL
When it was diagnosed, we both looked at each other and said, "Frank has always been a fighter."

FRANK
Gail's been my rock.

GAIL
He learned about ORGOVYX through a support group.

AVO
What is ORGOVYX? ORGOVYX is a prescription medicine used in adults for the treatment of advanced prostate cancer. It is not known if ORGOVYX is safe or effective in females or children.

Do not take ORGOVYX if you have had a severe allergic reaction to relugolix or any of the ingredients in ORGOVYX.

What should I tell my healthcare provider before taking ORGOVYX?

Tell your healthcare provider about all of your medical conditions, including if you:
  • Have any heart problems, including a condition called long QT syndrome.
  • Are pregnant or plan to become pregnant. ORGOVYX can harm your unborn baby and cause loss of pregnancy (miscarriage).
  • Have a partner who is pregnant or may become pregnant.
    • Males who have female partners who are able to become pregnant should use effective birth control (contraception) during treatment with ORGOVYX and for 2 weeks after the last dose of ORGOVYX.
  • Are breastfeeding or plan to breastfeed. It is not known if ORGOVYX passes into your breast milk.

Tell your healthcare provider about all the medicines or treatments you receive, including: prescription and over-the-counter medicines, vitamins, and herbal supplements. Taking ORGOVYX with certain other medicines can affect how ORGOVYX works or may cause side effects.

You should not start or stop any medicine before you talk with your healthcare provider who prescribed ORGOVYX.

GAIL
I've always had the ability to sit down with the doctors and Frank wanted me to do that.

FRANK
With any medication you really have to explore the positives and negatives. When I heard about the medicine, we looked at it in terms of my health, would it be the right thing for me to take. There's a term in football called being a grinder. When it's bad, and you think there's no way out of the hole that you're in, you grind. You can't be a quitter.

GAIL
And don't you ever forget.

AVO
What are the possible side effects of ORGOVYX?

Serious side effects of ORGOVYX include:
  • Changes in the electrical activity of your heart (QT prolongation). Your healthcare provider may check your body salts (electrolytes) and the electrical activity of your heart during treatment with ORGOVYX. Tell your healthcare provider right away if you get any signs or symptoms of QT prolongation, including:
    • dizziness
    • fainting
    • feeling that your heart is pounding or racing (palpitations)
    • chest pain
  • Allergic reactions. Stop taking ORGOVYX and tell your healthcare provider or get emergency medical help right away if you get any signs or symptoms of an allergic reaction, including:
    • swelling of your face, lips, tongue, throat, or trouble swallowing
    • trouble breathing
    • hives (raised bumps), rash, or redness all over your body
Most common side effects of ORGOVYX include:
  • hot flushes
  • increased blood sugar levels
  • increased blood fat (triglyceride) levels
  • muscle and joint pain
  • decreased blood hemoglobin levels
  • increased liver enzymes
  • tiredness
  • constipation
  • diarrhea
ORGOVYX may cause other side effects including weight gain, decreased sex drive, and erectile function problems.

ORGOVYX may cause fertility problems in males, which may affect your ability to father children. Talk to your healthcare provider if this is a concern for you.

These are not all the possible side effects of ORGOVYX. Call your doctor for medical advice about side effects or if you have a side effect that bothers you or does not go away.

You may report side effects of prescription drugs to the FDA. Visit www.fda.gov/medwatch or call 1-800-FDA-1088. Please see full Prescribing Information, including Patient Product Information, via the link provided.

(Frank's Care Partner)

GAIL
Advanced prostate cancer did underestimate me. And what I would do, as far as I would go to help Frank. Family, to me, means everything. In my family, I am a caregiver. It's just a routine, I've done it all my life.

FRANK
We got married on June the 24th of 1967.

GAIL
We'd known each other since basically we were 12 years old. He played football, I was a cheerleader. Frank has always been a fighter. And prostate cancer didn't know who they were dealing with. When it was diagnosed, he learned about ORGOVYX through the support group.

AVO
What is ORGOVYX? ORGOVYX is a prescription medicine used in adults for the treatment of advanced prostate cancer. It is not known if ORGOVYX is safe or effective in females or children.

Do not take ORGOVYX if you have had a severe allergic reaction to relugolix or any of the ingredients in ORGOVYX.

What should I tell my healthcare provider before taking ORGOVYX?

Tell your healthcare provider about all of your medical conditions, including if you:
  • Have any heart problems, including a condition called long QT syndrome.
  • Are pregnant or plan to become pregnant. ORGOVYX can harm your unborn baby and cause loss of pregnancy (miscarriage).
  • Have a partner who is pregnant or may become pregnant.
    • Males who have female partners who are able to become pregnant should use effective birth control (contraception) during treatment with ORGOVYX and for 2 weeks after the last dose of ORGOVYX.
  • Are breastfeeding or plan to breastfeed. It is not known if ORGOVYX passes into your breast milk.

Tell your healthcare provider about all the medicines or treatments you receive, including: prescription and over-the-counter medicines, vitamins, and herbal supplements. Taking ORGOVYX with certain other medicines can affect how ORGOVYX works or may cause side effects.

You should not start or stop any medicine before you talk with your healthcare provider who prescribed ORGOVYX.

GAIL
After talking with various professional people about the variety of medications that Frank was on and what they were for, they felt this was the route for Frank to go.

FRANK
She's the Major General...

GAIL
No, I'm the little General.

FRANK
...and I'm just the lowly captain.

GAIL
That's right.

AVO
What are the possible side effects of ORGOVYX?

Serious side effects of ORGOVYX include:
  • Changes in the electrical activity of your heart (QT prolongation). Your healthcare provider may check your body salts (electrolytes) and the electrical activity of your heart during treatment with ORGOVYX. Tell your healthcare provider right away if you get any signs or symptoms of QT prolongation, including:
    • dizziness
    • fainting
    • feeling that your heart is pounding or racing (palpitations)
    • chest pain
  • Allergic reactions. Stop taking ORGOVYX and tell your healthcare provider or get emergency medical help right away if you get any signs or symptoms of an allergic reaction, including:
    • swelling of your face, lips, tongue, throat, or trouble swallowing
    • trouble breathing
    • hives (raised bumps), rash, or redness all over your body
Most common side effects of ORGOVYX include:
  • hot flushes
  • increased blood sugar levels
  • increased blood fat (triglyceride) levels
  • muscle and joint pain
  • decreased blood hemoglobin levels
  • increased liver enzymes
  • tiredness
  • constipation
  • diarrhea
ORGOVYX may cause other side effects including weight gain, decreased sex drive, and erectile function problems.

ORGOVYX may cause fertility problems in males, which may affect your ability to father children. Talk to your healthcare provider if this is a concern for you.

These are not all the possible side effects of ORGOVYX. Call your doctor for medical advice about side effects or if you have a side effect that bothers you or does not go away.

You may report side effects of prescription drugs to the FDA. Visit www.fda.gov/medwatch or call 1-800-FDA-1088. Please see full Prescribing Information, including Patient Product Information, via the link provided.

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